Selma Blair is opening up about how her life has changed since her multiple sclerosis diagnosis.
“There is a truth with neurogedenerative brain disease. It is uncomfortable,” Blair, 46, began a lengthy Instagram post Monday. “It is a stadium of uncontrollable anxiety at times. Going out, being sociable holds a heavy price. My brain is on fire. I am freezing. We feel alone with it even though the loving support has been a god send and appreciated.”
Blair, an actress known for roles in “Cruel Intentions” and “Legally Blonde,” previously revealed that she learned about her diagnosis last August. Since then, she’s been vocal about her battle with the disease.
“People write me asking how I do it. I do my best,” she continued in the post. “But I choke with the pain of what I have lost and what I dare hope for. and how challenging it is to walk around. But my smiles are genuine. This is ok. Life is an adventure with many shards of awakening. I can’t sleep at night but daytime I have trouble staying awake.”
She concluded: “I am a grown woman holding onto a bear that belonged to a sister type of mine… I have a full week ahead with mothering and appointments and things to look forward to. But like many of us, I am praying. Soaking in love where I can. It’s not easy. That’s ok.”
Blair, 46, received her MS diagnosis after seeing actress Elizabeth Berkley’s brother, a doctor who identified lesions on her MRI.
The National Multiple Sclerosis Society website describes MS as “an unpredictable, often disabling disease of the central nervous system that disrupts the flow of information within the brain, and between the brain and body.”
The cause is unknown, the site says, though the disease is believed to be triggered by an environmental factor in a person with a genetic predisposition to respond. Most people are diagnosed between ages 20 and 50, and women are two to three times more likely to receive the diagnosis.
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Contributing: Kim Willis, USA TODAY